BMJ Case Reports is coming up to publishing its 3000th report soon but one aspect that hasn't been explored as much as others is the patient perspective.
The patient's voice is an important aspect to come through in a case report but their input often ends with signing the consent form! It doesn't have to be like that. The consequences of a particular condition or treatment on the person are often important reminders of clinical lessons or the sources of new hypotheses. The experience of patients with healthcare systems can help document and improve clinical performance.
Any e-patients out there that want to work on a patient perspective style case report? I'd be very happy to help.
Would love to participate. My family also would help. Thank You and looking forward to talking more.
ReplyDeleteGeorjean Parrish 623.217.2116
Thanks - I've sent you an email.
ReplyDeleteHi Dean,
ReplyDeleteI am interested but would like to have more information on what you are looking for exactly. I am involved in consumer engagement in research and on government committees.
I would also help. I'm a formerly chronic and now episodic migraineur of 25 years. I'm also a nurse and health communication researcher. I can tell you that my experiences have been much different from what I was taught to expect.
ReplyDeleteDean,
ReplyDeleteI would be interested in helping but would need to learn a bit more about what you have in mind.
Steve Wilkins